Living With Pain

Living With Pain

Living with pain.

That is where this all begins.

Pain: physical discomfort or distress.  Mental or emotional suffering or torment.  A distressing or unpleasant sensation.  Bodily suffering.  Someone or something that causes trouble or makes you feel annoyed or angry.

Depression.  Headaches.  Fibromyalgia.  Loneliness.  Nerve damage.  Anxiety.  Fatigue.  Illness.  Disease.  Hormonal imbalance.  Trauma.  Injury.  Divorce.  Infertility.  Arthritis.  Autoimmune disorder.  Irritable bowel.  Irritable spouse.  Sciatica.  Bipolar.  Cancer.  Grief.  Fear.  Migraines.  Tension.  Disfigurement.  Loss.  Doubt.  Delay.  Insecurity.

Have you ever lived with pain?

Have you ever lived with pain that wouldn’t go away?

It changes you, doesn’t it?  In ways you could never have expected.

I had a vision of my adult years—what my marriage would look like, my home life, my relationships.  I knew the type of parent I wanted to be, the type of professional I wanted to be, the type of person I wanted to be.  I fully expected those things to play out, as we always expect in our years of hopeful innocence.  

I didn’t picture antidepressants.  Or pain meds.  Or hormones.  I didn’t picture weight gain.  Or fatigue.  Or brain fog.  I didn’t picture sitting completely checked out at the dinner table while my family made ridiculous puns and sang ridiculous songs and laughed ridiculously hard.  I didn’t picture my teenage daughter reverting to her toddler years and waking me up in the middle of the night sobbing and unable to sleep.  I didn’t picture not having the energy to cook dinner or pursue goals or get through a day of counseling clients or training leaders.  I didn’t picture having to spend days on end curled up in bed every time the weather turned me into a human barometer.  I didn’t picture my daughter having to leave school, having to delay graduation, having to spend three weeks in the Cleveland Clinic.

I didn’t picture THIS.

But THIS is my life.  And I’m still walking out the painful lesson that you can either protest your life or persevere through it.

I read, as I was getting ready to write tonight, that the word “pain” comes from the Latin “poena” meaning a fine, a penalty.

I must confess, given that the commitment here is to honesty—there have been times I have looked upon these pieces of my life and questioned if they were, indeed, punishment.  Perhaps even believed it, at points.

Have you ever felt the same?

And, if we’re all honest, isn’t this line of questioning just a more personal variation on the age-old questionHow can a good and loving God allow suffering?  Let alone seemingly inflict it?

My faith tells me there must be a better way to define pain and suffering—that which is the compost out of which hope is fertilized and takes deep and steady root.  A way of viewing it from within the context of a plan that is not meant to harm but to incite that same hope.  A way of holding it up to the light in such a way that it catches the rays of the sun at just the right angle and transforms from something dark and jagged and hard into something of iridescence and beauty and worth.  A way of living a dual-promise life—both In this world you will have trouble AND Take heart, I have overcome the world.  A way of truly considering it JOY—of all things, JOY?—when we face trials of many kinds.

Ann Voskamp writes, in One Thousand Gifts,

Joy and pain, they are but two arteries of the one heart that pumps through all those who don’t numb themselves to really living. 

How often have I numbed myself thinking anesthesia was the best medicine for one living with their heart cut open?  And how deeply I regret it.  Moments spent sedated on the sidelines while my life played out in front of me.

But joy and pain must go together, as Ann suggests, as if two sides of the same organ, pumping blood to our extremities.  One receiving, one sending.  Circulating all that is life-giving to all within us that needs life.

I picture Joy, from Inside Out, holding all her yellow memory balls in the Memory Dump, experiencing, for the first time, her own sadness as she wept for the child she could not shelter from pain.  I know this feeling.  This sinking-in-the-pit-of-your-stomach mixture of grief and fear and unbearable ache.  But I know, too, even better than Joy, that every happy moment is somehow connected to a sad moment elsewhere, and that it is only in the darkness of pain and loss that the light of joy can shine the brightest.  Blue and yellow, swirling together, but never making green.

I can see the truth of this.  I can identify the darkness of pain amplifying in my own life the moments of joy, making seem them brighter, louder, fuller.  This I can receive.

But if pain is not punishment—if it is indeed not intended to inflict us or to penalize us—it is at the very least a leash that restricts and restrains us, is it not?

And this one I’m having a harder time with. 

I remember, growing up, walking our dog on occasion, and I remember how his silver little body would pull with such force—always, ALWAYS pulling.  As we only walked him when we were camping, he was never actually taught to heel—at home his limits were clear.  Doors.  Fence.  He didn—t need to heel in the backyard, he just needed to stay within the boundaries. 

But once that leash went on and the door to the car or camper was open, he would immediately strain at the leash, ready to run, ready to explore, ready to hunt, ready to GO.

Can you relate?

Now, imagine me a short little schnauzer, and imagine that they’ve forgotten to bring the harness which means the leash is instead attached to my choker-chain collar and as I am lurching and lunging I am also choking and coughing and gagging because between the leash and they collar they are not only holding me back, they are also choking the life out of me.

Can you relate to THAT?

I’ve dealt with chronic pain and hormonal depression my entire life and always managed to be highly functional.  To even, at times, be incredibly successful.

But something has changed in these past five years and I find myself, most days, struggling just to be functionalish.  

And when the pain and the fatigue become a leash that limits me to a six-foot radius around the spot to which it is anchored…

Everything in life changes.

It begins with pain.

But that isn’t where it ends.  

Somewhere along this journey, I hope to make peace with that which restricts and restrains—to see it through transformational lenses and to allow what I see there to then transform ME.  I hope to learn, along with my daughter, the cessation of striving that comes from willing surrender rather than this resistance in continual tug-of-war with resignation.

I hope to learn, to take a line from one of my favorite books, Acceptance with Joy.

Pain and joy.  They CAN go hand in hand.

But to get there, we must take pain’s hand, first.

We can resist it or receive it.

The choice is up to us.

2 comments

  1. BeejSteph says:

    Sometimes I Wonder If You Are Secretly Living In Our House 🙂 Stephen And I Have Both Asked Ourselves Many Millions Of Times…Are We Secretly Being Punished For Things That Others Are Not? Many Times I Have Gone To God In Prayer And Asked…(More Liked Begged And Pleaded) What Is It You Want From Me That You Would Hurt Me Or Even Worse…Hurt My Child? What Did We Do Wrong, And What Can We Do To Get You To Make This Stop? Stephen Always SCREAMS…”Please God, Stop This Vicious Ride And Just Let Me The Heck Off Of It”!!!!!!! Some Of The Words He Really Says I Can NOT Type Into Your Blog. But I Think You Get The Idea.
    Like You, I Did NOT Picture My Life Like This. I Did Not Picture My Life With My Son Being Diagnosed With 6 Autoimmune Diseases Starting At Age 11. I Certainly Didn’t, Even In My Wildest Nightmares, Ever Picture Doing This Mom Thing, And Dealing With The INSANE Pain Thing…All By Myself!! Now Almost 11 Yrs Later, We Are Still Fighting The Ugly Demons Of Pain. It’s One Thing When I Am Fighting My Own Pain Issues…I Learned A Long Time Ago Through One Of My Grandmother’s …To Just Learn To Roll With It, Breathe Deep, And Accept It For What It Is. Grandma Always Said, “If I Can Help You Deal With It, Just Let Me Know” She Often Used Old Fashioned Amish Remedies…Some Seemed Laughable At Best, But When They Worked…You Didn’t Question It. I Still Use Some Of Those Old Fashioned Amish Remedies For My Son Today. Some Days They Work, And Others They Do Not.
    The Hardest Part Of Dealing With Pain Issues For My Son Is When People Look At Him And They Don’t See The Huge Red, Hot, Swollen Joints. They Don’t See Him Barely Able To Walk To The Mailbox And Back…And They Just Assume He Is A Perfectly Normal Young Adult. And We Know That Couldn’t Be Further From The Truth. We See Kids And Young Adults In The Rheumatology, & Pain Clinics We Go To, And They Are Horribly Disfigured, And They Are In Wheelchairs, And We Always Realize That His Life Could Be So Much Worse. But Somehow That Doesn’t Come To The Front Of His Mind When He Is Screaming In Pain. The Very Worst Part Of Dealing With My Son’s Pain Is When People In Church….People On The Prayer Teams..Have The Audacity To Ask Stephen If Maybe He Has Unconfessed Sin In His Life…As That Would Be One Of The Reasons For God To Allow The Pain To Go On And On And On. They Have MANY Times Come To Him (In Front Of Friends) And Told Him That God Showed Them That He Was Living In Sin, And That God Would Not Stop His Pain Until He Confessed To That Sin, And Walked A More Holy Life. For That One Reason Alone…My Son Has NEVER Been Back To Church Since The Last Time That Happened. Now They Do It Through Social Media…Whether Through Mine Or His…They Refuse To Stop!
    Needless To Say, My Son Is Finding Keira’s Part Of Your FunctionaLISH Blog..To Be A Breath Of Fresh Air In His Life. She Truly Inspires Him To Keep Doing What He Needs To Do…Every Day Just To Make It Through The Day. He Enjoys Reading Yours As Well Ms. Lorie, But It Is Because Of Keira’s Age, That He Relates So Well To What She Says. Thanks So Much For Your AMAZING Blog!! You Help Us Get Through Our Tough Days So Much Easier…Just Knowing That You Understand Our Pain!

  2. That blesses us both so much, BJ. I knew in my spirit from the very beginning that Keira’s contribution was deeply necessary and that it would be a lifeline for other teens and young adults. I’m so glad God is using it in Stephen’s live in this way. What a privilege.

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